Accuracy of congenital anomaly coding in live birth children recorded in European health care databases, a EUROlinkCAT study.

ABSTRACT: Electronic health care databases are increasingly being used to investigate the epidemiology of congenital anomalies (CAs) although there are concerns about their accuracy. The EUROlinkCAT project linked data from eleven EUROCAT registries to electronic hospital databases. The coding of CAs in electronic hospital databases was compared to the (gold standard) codes in the EUROCAT registries. For birth years 2010-2014 all linked live birth CA cases and all children identified in the hospital databases with a CA code were analysed. Registries calculated sensitivity and Positive Predictive Value (PPV) for 17 selected CAs. Pooled estimates for sensitivity and PPV were then calculated for each anomaly using random effects meta-analyses. Most registries linked more than 85% of their cases to hosp

SUBMITTER: Bakker MK 

PROVIDER: S-EPMC10033551 | biostudies-literature | 2023 Mar

REPOSITORIES: biostudies-literature