Mining the Data: Exploring Rural Patients' Attitudes about the Use of Their Personal Information in Research.

ABSTRACT:

Background

This study examines rural patients' perceived importance of knowing or being consulted about researchers' access and use of their personal data (identifiable and de-identified health information, and identifiable and de-identified non-health information) across five scenarios. This study also examines their views on stewardship or governance of their personal information by researchers in their healthcare systems.

Methods

We conducted a survey by mail. Data were analyzed using descriptive statistics. Multivariable regression analyses were conducted across each scenario and type of personal data with the same variables included in each model.

Results

The majority of participants said it was "very important/absolutely essential" to know the purpose of the stu

SUBMITTER: McCormick JB 

PROVIDER: S-EPMC10038193 | biostudies-literature | 2022 Apr-Jun

REPOSITORIES: biostudies-literature