Assessing What Matters to People Affected by Alzheimer's Disease: A Quantitative Analysis.

ABSTRACT:

Introduction

In this phase of the ongoing What Matters Most study series, designed to evaluate concepts that are meaningful to people affected by Alzheimer's disease (AD), we quantified the importance of symptoms, impacts, and outcomes of AD to people at risk for or with AD and care partners of people with AD.

Methods

We administered a web-based survey to individuals at risk for or with AD (Group 1: unimpaired cognition with evidence of AD pathology; Group 2: AD risk factors and subjective cognitive complaints/mild cognitive impairment; Group 3: mild AD) and to care partners of individuals with moderate AD (Group 4) or severe AD (Group 5). Respondents rated the importance of 42 symptoms, impacts, and outcomes on a scale ranging from 1 ("not at all important") to 5 ("extremel

SUBMITTER: Hauber B 

PROVIDER: S-EPMC10043143 | biostudies-literature | 2023 Apr

REPOSITORIES: biostudies-literature