Public attitudes toward cloud computing and willingness to share personal health records (PHRs) and genome data for health care research in Japan.

ABSTRACT: Japan's government aims to promote the linkage of medical records, including medical genomic testing data and personal health records (PHRs), via cloud computing (the cloud). However, linking national medical records and using them for health care research can be controversial. Additionally, many ethical issues with using cloud networks with health care and genome data have been noted. However, no research has yet explored the Japanese public's opinions about their PHRs, including genome data, being shared for health care research or the use of the cloud for storing and analyzing such data. Therefore, we conducted a survey in March 2021 to clarify the public's attitudes toward sharing their PHRs, including genome data and using the cloud for health care research. We analyzed data to experi

SUBMITTER: Kusunose M 

PROVIDER: S-EPMC10060394 | biostudies-literature | 2023 Mar

REPOSITORIES: biostudies-literature