Exploring the experience of family caregivers of children with medical complexity during COVID-19: a qualitative study.

ABSTRACT:

Background and objectives

Children with medical complexity have been disproportionately impacted by the COVID-19 pandemic and the associated changes in healthcare delivery. The primary objective of this study was to gain a thorough understanding of the lived experiences of family caregivers of children with medical complexity during the pandemic.

Methods

We conducted semi-structured interviews with family caregivers of children with medical complexity from a tertiary pediatric hospital. Interview questions focused on the aspects of caregiving for children with medical complexity, impact on caregiver mental and physical well-being, changes to daily life secondary to the pandemic, and experiences receiving care in the healthcare system. Interviews were conducted until thematic

SUBMITTER: Pitch N 

PROVIDER: S-EPMC10077324 | biostudies-literature | 2023 Apr

REPOSITORIES: biostudies-literature