Patients as research partners in preference studies: learnings from IMI-PREFER.

ABSTRACT:

Background

There is growing recognition of the importance of patient and public stakeholder involvement (PPI) in patient preference research. However, limited evidence exists regarding the impact, barriers and enablers of PPI in preference studies. The Innovative Medicines Initiative (IMI)-PREFER project conducted a series of preference case studies which incorporated PPI.

Objective

To describe: (1) how PPI was operationalized in the PREFER case studies, (2) the impact of PPI, and (3) factors that served to impede and facilitate PPI.

Methods

We reviewed the PREFER final study reports to determine how patient partners were involved. We conducted a thematic framework analysis to characterize the impact of PPI and then administered a questionnaire to the PREFER study lea

SUBMITTER: Smith MY 

PROVIDER: S-EPMC10080166 | biostudies-literature | 2023 Apr

REPOSITORIES: biostudies-literature