Views of people living with dementia and their carers on their present and future: a qualitative study.

ABSTRACT:

Background

Dementia leads to multiple issues including difficulty in communication and increased need for care and support. Discussions about the future often happen late or never, partly due to reluctance or fear. In a sample of people living with dementia and carers, we explored their views and perceptions of living with the condition and their future.

Methods

Semi-structured interviews were conducted in 2018-19 with 11 people living with dementia and six family members in England. Interviews were audio-recorded, transcribed and analysed using reflexive thematic analysis.

Results

Findings were explored critically within the theory of social death and three themes were developed: (1) loss of physical and cognitive functions, (2) loss of social identity, and (3) socia

SUBMITTER: Nimmons D 

PROVIDER: S-EPMC10084652 | biostudies-literature | 2023 Apr

REPOSITORIES: biostudies-literature