Mapping exercise and status update of eight established registries within the TREatment of ATopic eczema Registry Taskforce.

ABSTRACT:

Background

The TREatment of ATopic eczema (TREAT) Registry Taskforce is a collaborative international network of registries collecting data of atopic eczema (AE) patients receiving systemic and phototherapy with the common goal to provide long-term real-world data on the effectiveness, safety and cost-effectiveness of therapies. A core dataset, consisting of domains and domain items with corresponding measurement instruments, has been developed to harmonize data collection.

Objectives

We aimed to give an overview of the status and characteristics of the eight established TREAT registries, and to perform a mapping exercise to examine the degree of overlap and pooling ability between the national registry datasets. This will allow us to determine which research questions can b

SUBMITTER: Bosma AL 

PROVIDER: S-EPMC10087854 | biostudies-literature | 2023 Jan

REPOSITORIES: biostudies-literature