Regional Swedish study found that one in seven coeliac patients experienced loss of follow up during childhood.

ABSTRACT:

Aim

To examine the clinical follow up of paediatric coeliac disease and the rate of loss of follow up during childhood, for which data are scarce.

Methods

In a cohort of coeliac children diagnosed in 2013-2018 in Gothenburg, Sweden, we retrospectively explored the follow-up practice of paediatric coeliac disease until June 2021. We used medical records from hospital-based paediatric gastroenterology and general paediatric outpatient clinics, laboratory records, and questionnaires. Loss of follow up was defined no coeliac disease-related follow up or tissue transglutaminase test over the past 2 years of study enrolment.

Results

We included 162 children (58% girls) aged 7.8-18.2 years (average 12.7). Most participants (76%) were followed at general paediatric outpatient

SUBMITTER: Ulnes M 

PROVIDER: S-EPMC10107490 | biostudies-literature | 2023 Mar

REPOSITORIES: biostudies-literature