Burden and resources in caregivers of people with multiple sclerosis: A qualitative study.

ABSTRACT:

Background

Caregivers of people with Multiple Sclerosis are required to provide ongoing assistance especially during the advanced stages of the disease. They have to manage interventions and assume responsibilities which significantly impact both their personal quality of life and family's dynamics.

Objective

A qualitative phenomenological study was carried out to understand the experience of burden in caregivers and their resources to manage it. The study also explores how healthcare services involved in the Multiple Sclerosis Clinical Pathway respond to the needs of well-being of patients and family members.

Methods

17 caregivers were involved in focus groups and in semi-structured individual interviews.

Results

Fatigue is experienced by all respondents and i

SUBMITTER: Benini S 

PROVIDER: S-EPMC10109507 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature