Young people's data governance preferences for their mental health data: MindKind Study findings from India, South Africa, and the United Kingdom.

ABSTRACT: Mobile devices offer a scalable opportunity to collect longitudinal data that facilitate advances in mental health treatment to address the burden of mental health conditions in young people. Sharing these data with the research community is critical to gaining maximal value from rich data of this nature. However, the highly personal nature of the data necessitates understanding the conditions under which young people are willing to share them. To answer this question, we developed the MindKind Study, a multinational, mixed methods study that solicits young people's preferences for how their data are governed and quantifies potential participants' willingness to join under different conditions. We employed a community-based participatory approach, involving young people as stakeholders and

SUBMITTER: Sieberts SK 

PROVIDER: S-EPMC10115253 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature