Lived experience-centred word clouds may improve research uncertainty gathering in priority setting partnerships.

ABSTRACT:

Introduction

AO Spine RECODE-DCM was a multi-stakeholder priority setting partnership (PSP) to define the top ten research priorities for degenerative cervical myelopathy (DCM). Priorities were generated and iteratively refined using a series of surveys administered to surgeons, other healthcare professionals (oHCP) and people with DCM (PwDCM). The aim of this work was to utilise word clouds to enable the perspectives of people with the condition to be heard earlier in the PSP process than is traditionally the case. The objective was to evaluate the added value of word clouds in the process of defining research uncertainties in National Institute for Health Research (NIHR) James Lind Alliance (JLA) Priority Setting Partnerships.

Methods

Patient-generated word clouds were cre

SUBMITTER: Mowforth OD 

PROVIDER: S-EPMC10122197 | biostudies-literature | 2023 Apr

REPOSITORIES: biostudies-literature