Family Communication about Diagnostic Genetic Testing for Younger-Onset Dementia.

ABSTRACT: Younger-onset dementia (YOD) refers to onset before 65 years of age and may be associated with a genetic cause. Family communication surrounding any genetic risk is complex, and this process may be further complicated in a YOD context due to its effects on cognition, behaviour, and associated psychosocial consequences. This study aimed to investigate how individuals experience family communication about potential genetic risk and testing for YOD. Thematic analysis was performed on verbatim transcripts of nine semi-structured interviews undertaken with family members who attended a neurogenetics clinic due to a relative diagnosed with YOD. The interviews explored the participants' experiences of learning that YOD might be inherited and the ensuing family communication about genetic testing.

SUBMITTER: Poulton A 

PROVIDER: S-EPMC10144767 | biostudies-literature | 2023 Apr

REPOSITORIES: biostudies-literature