'Intensive palliative care': a qualitative study of issues related to nurses' care of people with amyotrophic lateral sclerosis at end-of-life.

ABSTRACT:

Background

Amyotrophic lateral sclerosis (ALS) is currently an incurable and fatal disease, which often comes with a high symptom burden at the end-of-life stage. Little is known about nurses' experiences in this context.

Objective

To explore the experience of nurses caring for people with ALS at end-of-life.

Design

A qualitative multiple-case study design.

Method

Individual semi-structured interviews were conducted between February and August 2022 with nurses from Quebec, Canada, who had provided care to at least one person living with ALS at the end-of-life in the past 12 months. The content analysis method was used for data analysis and within-case and cross-case analyses were conducted, as well as comparative analyses according to the type of position held

SUBMITTER: Daneau S 

PROVIDER: S-EPMC10155001 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature