Factors of well-being of youth with complex medical conditions from the experience of hospitalization and convalescence: A pilot study.

ABSTRACT: Well-being in children with a complex medical condition (CMC) impacts the way they view and communicate with their immediate environment as well as their development, and it is thus necessary to inquire about the contextual issues and different needs that a CMC carries. This pilot study aimed to identify factors of pediatric well-being from the experience of hospitalization and convalescence of youth with CMC and their caregivers, in a cross-sectional analysis using a selective methodology complemented by an indirect observational methodology. We analyzed the quality of life and well-being of youth with CMC using a validated KINDLR questionnaire. We collected 35 surveys: 11 from youth with CMC and 24 from caregivers from Spain. We focused the analysis on sociodemographics, well-being perce

SUBMITTER: Munoz-Violant S 

PROVIDER: S-EPMC10159209 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature