Return of aggregate results to study participants: Facilitators, barriers, and recommendations.

ABSTRACT:

Background

Most researchers and study participants believe that the summary, or aggregate, results of health research should be returned to study participants. However, researchers often do not return aggregate results. A better understanding of the impediments to results return could support improvements in this practice.

Methods

This qualitative study convened eight virtual focus groups, four with investigators and four with patient partners from research studies funded by the Patient-Centered Outcomes Research Institute (PCORI). In total, 23 investigators and 20 partners participated. We explored perspectives, experiences, influences, and recommendations related to aggregate results return.

Results

Focus group participants described the ethical importance of return

SUBMITTER: Sgro GM 

PROVIDER: S-EPMC10172747 | biostudies-literature | 2023 Jun

REPOSITORIES: biostudies-literature