Research recruitment and consent methods in a pandemic: a qualitative study of COVID-19 patients' perspectives.

ABSTRACT:

Background

Virtual data collection methods and consent procedures adopted in response to the COVID-19 pandemic enabled continued research activities, but also introduced concerns about equity, inclusivity, representation, and privacy. Recent studies have explored these issues from institutional and researcher perspectives, but there is a need to explore patient perspectives and preferences. This study aims to explore COVID-19 patients' perspectives about research recruitment and consent for research studies about COVID-19.

Methods

We conducted an exploratory qualitative focus group and interview study among British Columbian adults who self-identified as having had COVID-19. We recruited participants through personal contacts, social media, and REACH BC, an online platform t

SUBMITTER: Small SS 

PROVIDER: S-EPMC10173898 | biostudies-literature | 2023 May

REPOSITORIES: biostudies-literature