Unmet needs and wish for support of family caregivers of primary brain tumor patients.

ABSTRACT:

Background

Most primary brain tumor patients rely on family caregivers for support. Caregiving can be rewarding, but also leads to significant burden from unmet needs. We aimed to: (1) identify and characterize caregivers' unmet needs; (2) determine associations between unmet needs and wish for support; (3) evaluate acceptability of the Caregiver Needs Screen (CNS) and perceived feasibility in clinical practice.

Methods

Family caregivers of primary brain tumor patients were recruited from outpatient clinics and asked to complete an adapted version of the CNS consisting of 33 common issues caregivers report (item scale 0-10), and the wish for support (yes/no). Participants ranked acceptability and feasibility (item scale 0-7; higher scores being positive) of the adapted CNS.

SUBMITTER: Pointon L 

PROVIDER: S-EPMC10180375 | biostudies-literature | 2023 Jun

REPOSITORIES: biostudies-literature