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Dataset Information

Development and usability testing of your MS questionnaire: A patient-based digital tool to monitor symptoms of multiple sclerosis.


ABSTRACT:

Objectives

We describe the development of Your Multiple Sclerosis Questionnaire and present the real-world usability testing results of Your Multiple Sclerosis Questionnaire.

Methods

The Your Multiple Sclerosis Questionnaire tool was developed in four stages to collect feedback from people living with MS (plwMS), patient organizations, and clinicians on content, format, and applicability. To assess its usability, 13 clinicians across 7 countries completed an online survey after using the tool with plwMS in a total of 261 consultations from September, 2020 to July, 2021.

Results

The initial Your Multiple Sclerosis Questionnaire version was based on findings from previous research developing MSProDiscuss™, a clinician-completed tool. Subsequently, insights from plwMS ob

SUBMITTER: Giovannoni G 

PROVIDER: S-EPMC10185975 | biostudies-literature | 2023 Jan-Dec

REPOSITORIES: biostudies-literature