Assessment of Disease-related Knowledge Among Children With Inflammatory Bowel Disease and their Family Using IBD-KID2: Evaluating Tool Generalizability.

ABSTRACT: Children with inflammatory bowel disease (IBD) and their families benefit from improved knowledge of their disease and treatment. Knowledge levels of individual family members are infrequently studied but may identify where education is best directed. We aimed to assess disease-specific knowledge among children with IBD, parents, and siblings, using a validated assessment tool (IBD-KID2), and to establish generalizability of IBD-KID2.

Methods

Children with IBD and family members were recruited from tertiary IBD clinics in New Zealand, Australia, and Canada. All participants completed IBD-KID2 online at baseline, and the children with IBD again after 2 weeks to assess reliability.

Results

Participants included 130 children with IBD, 118 mothers, 55 fathers, and 37 siblings. Ch

SUBMITTER: Vernon-Roberts A 

PROVIDER: S-EPMC10191511 | biostudies-literature | 2021 Aug

REPOSITORIES: biostudies-literature