Clinical course of patients with hypertrophic cardiomyopathy away from tertiary referral care.

ABSTRACT:

Aims

Data on the clinical course of hypertrophic cardiomyopathy (HCM) are mainly derived from tertiary HCM centre studies, and knowledge of clinical outcomes of patients leaving specialty care and returning to local physicians is limited due to gaps between clinical encounters or complete loss of follow-up. This survey aims to describe the clinical course of HCM in patients following their evaluation at a tertiary referral centre.

Methods and results

A comprehensive outcomes survey was developed and sent to 4495 eligible patients with HCM previously evaluated at Mayo Clinic. Questions assessed general well-being, New York Heart Association class, procedures performed, and probable HCM-triggered ventricular arrhythmic events (VAEs) since last visit. In total, 2058 patients (m

SUBMITTER: Garmany R 

PROVIDER: S-EPMC10192262 | biostudies-literature | 2023 Jun

REPOSITORIES: biostudies-literature