Development and validation of the scale for symptom clusters in patients with myasthenia gravis.

ABSTRACT:

Background

Patients with myasthenia gravis(MG)often experience multiple symptoms concurrently, which can have an adverse effect on their quality of life(QOL). However, a specific, systemic and reliable scale for symptom clusters in MG is lacking.

Aims

To develop reliable assessment scale for symptom clusters in patients with MG.

Design

A cross-sectional descriptive study.

Methods

Based on the unpleasant symptom theory(TOUS), the first draft of the scale was developed through review literature, qualitative interview, and Delphi expert correspondence, the items of the scale were presented and adjusted through cognitive interviews with 12 patients. To conveniently assess the validity and reliability of the scale, a cross-sectional survey was conducted in 283 patie

SUBMITTER: Shen F 

PROVIDER: S-EPMC10197207 | biostudies-literature | 2023 May

REPOSITORIES: biostudies-literature