Work participation in adults with rare genetic diseases - a scoping review.

ABSTRACT:

Background

Work participation is a crucial aspect of health outcome and an important part of life for most people with rare genetic diseases. Despite that work participation is a social determinant of health and seems necessary for understanding health behaviours and quality of life, it is an under-researched and under-recognized aspect in many rare diseases. The objectives of this study was to map and describe existing research on work participation, identify research gaps, and point to research agendas in a selection of rare genetic diseases.

Methods

A scoping review was performed by searching relevant literature in bibliographic databases and other sources. Studies addressing work participation in people with rare genetic diseases published in peer reviewed journals were

SUBMITTER: Velvin G 

PROVIDER: S-EPMC10197424 | biostudies-literature | 2023 May

REPOSITORIES: biostudies-literature