Social Media Listening and Digital Profiling Study of People With Headache and Migraine: Retrospective Infodemiology Study.

ABSTRACT:

Background

There is an unmet need for a better understanding and management of headache, particularly migraine, beyond specialist centers, which may be facilitated using digital technology.

Objective

The objective of this study was to identify where, when, and how people with headache and migraine describe their symptoms and the nonpharmaceutical and medicinal treatments used as indicated on social media.

Methods

Social media sources, including Twitter, web-based forums, blogs, YouTube, and review sites, were searched using a predefined search string related to headache and migraine. The real-time data from social media posts were collected retrospectively for a 1-year period from January 1, 2018, to December 31, 2018 (Japan), or a 2-year period from January 1, 2017,

SUBMITTER: Goadsby P 

PROVIDER: S-EPMC10199393 | biostudies-literature | 2023 May

REPOSITORIES: biostudies-literature