COVID-19- Experiences and support needs of children and young people with Hydrocephalus and parents in the United Kingdom.

ABSTRACT:

Purpose

Little is known about the impact of COVID-19 on children and young people (CYP) with hydrocephalus and their families. This study explored the experiences and support needs of CYP with hydrocephalus and parents who have a child with hydrocephalus during the COVID-19 pandemic.

Methods

CYP with hydrocephalus and parents of CYP with hydrocephalus in the United Kingdom completed an online survey with open and closed questions exploring experiences, information, support needs and decision making processes. Qualitative thematic content analysis and descriptive quantitative analyses were undertaken.

Results

CYP aged 12-32 years (n=25) and parents of CYP aged 0-20 years (n=69) responded. Parents (63.5%) and CYP (40.9%) worried about the virus, and both were vigilant f

SUBMITTER: Collaco N 

PROVIDER: S-EPMC10199430 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature