Unmet supportive care needs in families of children with chronic health conditions: an Australian cross-sectional study.

ABSTRACT:

Background

The aim of this study was to identify similarities and differences in the unmet supportive care needs (USCN) of families of children with major chronic health conditions (CHCs) using a universal need assessment tool.

Methods

A cross-sectional online survey involving parents of children with congenital heart disease (CHD), type 1 diabetes mellitus (T1D), cancer, and asthma diagnosed within the last 5 years recruited via social media and support organizations. Thirty-four items assessing the USCN across six domains (care needs, physical and social needs, informational needs, support needs, financial needs, child-related emotional needs) were responded to on a 4-point Likert scale [no need (1) to high need (4)]. Descriptive statistics identified the level of need, an

SUBMITTER: Thomas S 

PROVIDER: S-EPMC10225288 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature