Patients' views on HCC biospecimen research: Understanding the role of race and culture through interviews.

ABSTRACT:

Background

HCC is a leading cause of cancer-related mortality; there are significant racial and ethnic disparities in HCC risk and survival. Our knowledge regarding whether molecular and genetic factors contribute to these observed differences is limited by scarcity of biospecimens, which are especially scarce in minority populations. Because biospecimens are not needed for HCC diagnosis or treatment, patients are less likely to provide biospecimens solely for research purposes.

Methods

We identified participants, n = 32, from an ongoing prospective cohort study. Using semi-structured interviews, we examined perceptions of providing biospecimens for research to identify factors that motivate and hinder their willingness to donate.

Results

Directed content analysis res

SUBMITTER: Jones PD 

PROVIDER: S-EPMC10234466 | biostudies-literature | 2023 Jun

REPOSITORIES: biostudies-literature