Impact of social determinants of health on individuals living with generalized myasthenia gravis and implications for patient support programs.

ABSTRACT:

Introduction

Social determinants of health (SDOH) are important contributors to health outcomes, and better understanding their impact on individuals diagnosed with rare, chronic diseases with high burden and unmet need is critical. Characterizing SDOH burden can help improve the design of patient support programs (PSPs), using targeted approaches to remove barriers to access.

Methods

This study used a mixed-methods strategy employing a quantitative survey, which was designed based on qualitative interviews, to understand the unmet needs and awareness/utilization of PSPs among individuals living with generalized myasthenia gravis (gMG) and experiencing SDOH barriers. The survey was completed by 38 individuals living with gMG, of which the majority were non-White/Caucasian, u

SUBMITTER: Hughes T 

PROVIDER: S-EPMC10235801 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature