Development of consensus-based considerations for use of adult proxy reporting: an ISOQOL task force initiative.

ABSTRACT:

Aims

Many large-scale population-based surveys, research studies, and clinical care allow for inclusion of proxy reporting as a strategy to collect outcomes when patients are unavailable or unable to provide reliable self-report. Prior work identified an absence of methodological guidelines regarding proxy reporting in adult populations, including who can serve as a proxy, and considerations for data collection, analysis, and reporting. The primary objective of this work by the ISOQOL Proxy Task Force was to review documents and clinical outcome assessment measures with respect to proxy reporting and to develop, through consensus, considerations for proxy reporting.

Methods

We assembled an international group with clinically relevant and/or methodological expertise on proxy

SUBMITTER: Lapin B 

PROVIDER: S-EPMC10238331 | biostudies-literature | 2023 Jun

REPOSITORIES: biostudies-literature