Feeding back of individual genetic results in Botswana: mapping opportunities and challenges.

ABSTRACT:

Purpose

We explored the views of Botswana stakeholders involved in developing, implementing and applying ethical standards for return of individual study results from genomic research. This allowed for mapping opportunities and challenges regarding actionability requirements that determine whether individual genomic research results should be fed back.

Methods

Using in-depth interviews, this study explored the views of sixteen (16) stakeholders about the extent, nature and timing of feedback of individual genomic research findings, including incidental findings that arise in the context of African genomics research. Coded data was analyzed through an iterative process of analytic induction to document and interpret themes.

Results

Overall, respondents were of the view

SUBMITTER: Kasule M 

PROVIDER: S-EPMC10239568 | biostudies-literature | 2023 Jun

REPOSITORIES: biostudies-literature