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Dataset Information

The perception of pediatric sickle cell anemia patient's caregivers toward hematopoietic stem cell transplantation (single-center experience, Saudi Arabia).


ABSTRACT:

Background

Sickle cell disease (SCD) is a relatively common genetic disorder in Saudi Arabia characterized by the predominance of sickle hemoglobin (HbS). Although multiple supportive care options exist for patients with SCD, hematopoietic stem cell transplantation (HSCT) is the only cure available and has become highly successful, with an almost 91% overall survival rate. However, pursuing this procedure is still restrained as a curative treatment option. Therefore, this study aimed to evaluate the perception of parents' caregivers at the National Guard Hospital pediatric hematology clinic regarding using HSCT as a curative approach for their children with SCD.

Methods

This is a cross-sectional study of the interviewer-administered survey distributed utilizing electronic de

SUBMITTER: Monagel DA 

PROVIDER: S-EPMC10242087 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature