Good to know - This is PPIE! Development of a training tool for public and patient involvement and engagement in pediatric oncological research.

ABSTRACT:

Background

Public and Patient Involvement and Engagement (PPIE) in research is still a poorly understood and infrequently practiced concept, although the literature stresses clear benefits for quality of care and research as well as patient satisfaction and empowerment.

Aim

The presently described project aimed at using different PPIE methods to evaluate the current state of knowledge about and attitude toward PPIE in research among different stakeholders of pediatric oncology in Europe. Based on the findings a tailored training tool directed toward the different stakeholders will be designed.

Methods and results

An interdisciplinary steering group developed a mixed-method 3-stage process to (1) investigate the current knowledge and attitudes about PPIE using a Europe

SUBMITTER: Weiler-Wichtl LJ 

PROVIDER: S-EPMC10242658 | biostudies-literature | 2023 Jun

REPOSITORIES: biostudies-literature