Patients' and health care providers' perspectives on quality of hemophilia care in the Netherlands: a questionnaire and interview study.

ABSTRACT:

Background

Hemophilia care has improved greatly because of advances in treatment options and comprehensive care. In-depth insight into the perspectives of persons with hemophilia and health care providers on their care may provide targets for further improvements.

Objectives

To assess satisfaction of the hemophilia population with their care, to explore factors determining care satisfaction, and to identify areas for potential health care improvements, including digital health tools.

Methods

First, to assess care satisfaction and factors determining satisfaction and health care improvements, data from a nationwide, cross-sectional questionnaire among 867 adult and pediatric Dutch persons with hemophilia A or B were analyzed. This included the Hemophilia Patient Satisf

SUBMITTER: Brands MR 

PROVIDER: S-EPMC10279896 | biostudies-literature | 2023 May

REPOSITORIES: biostudies-literature