Estimated costs for Duchenne muscular dystrophy care in Brazil.

ABSTRACT:

Background

The economic burden of rare diseases on health systems is still not widely measured, with the generation of accurate information about the costs with medical care for subjects with rare diseases being crucial when defining health policies. Duchenne Muscular Dystrophy (DMD) is the most common form of muscular dystrophy, with new technologies recently being studied for its management. Information about the costs related to the disease in Latin America is scarce, and the objective of this study is to evaluate the annual hospital, home care and transportation costs per patient with DMD treatment in Brazil.

Results

Data from 27 patients were included, the median annual cost per patient was R$ 17,121 (IQR R$ 6,786; 25,621). Home care expenditures accounted for 92% of th

SUBMITTER: Schneider NB 

PROVIDER: S-EPMC10288739 | biostudies-literature | 2023 Jun

REPOSITORIES: biostudies-literature