Understanding pediatric palliative care within interdisciplinary palliative programs: a qualitative study.

ABSTRACT:

Purpose

To describe the process of delivery of pediatric palliative care from the perspective of a pediatric interdisciplinary team and the children's parents.

Methods

A qualitative descriptive case study was conducted. Purposeful sampling took place within a specialized pediatric palliative care Unit in Madrid (Spain), located at the Niño Jesus Hospital. The study participants included a specialized pediatric palliative care team from Madrid's pediatric palliative care program, other professional teams involved in interdisciplinary care and parents of children under pediatric palliative care. Data were collected via semi-structured interviews, focus groups and researchers' field notes. A thematic analysis was performed.

Results

This study included 28 participants (20

SUBMITTER: Rico-Mena P 

PROVIDER: S-EPMC10290414 | biostudies-literature | 2023 Jun

REPOSITORIES: biostudies-literature