Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation.

ABSTRACT:

Objective

To pilot feasibility and acceptability of HomeVENT, a systematic approach to family-clinician decision-making about pediatric home ventilation.

Methods

Parents and clinicians of children facing home ventilation decisions were enrolled at 3 centers using a pre/post cohort design. Family interventions included: 1) a website describing the experiences of families who previously chose for and against home ventilation 2) a Question Prompt List (QPL); 3) in-depth interviews exploring home life and values. Clinician HomeVENT intervention included a structured team meeting reviewing treatment options in light of the family's home life and values. All participants were interviewed one month after the decision.

Results

We enrolled 30 families and 34 clinicians. Most U

SUBMITTER: Boss RD 

PROVIDER: S-EPMC10294038 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature