The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers.

ABSTRACT:

Background

The Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model.

Methods

This is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children's hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data.

Results

The themes of the empirical Dignity Model were broadly supported in this study, but some themes w

SUBMITTER: Cai S 

PROVIDER: S-EPMC10320906 | biostudies-literature | 2023 Jul

REPOSITORIES: biostudies-literature