Biobanking and consenting to research: a qualitative thematic analysis of young people's perspectives in the North East of England.

ABSTRACT:

Background

Biobanking biospecimens and consent are common practice in paediatric research. We need to explore children and young people's (CYP) knowledge and perspectives around the use of and consent to biobanking. This will ensure meaningful informed consent can be obtained and improve current consent procedures.

Methods

We designed a survey, in co-production with CYP, collecting demographic data, views on biobanking, and consent using three scenarios: 1) prospective consent, 2) deferred consent, and 3) reconsent and assent at age of capacity. The survey was disseminated via the Young Person's Advisory Group North England (YPAGne) and participating CYP's secondary schools. Data were analysed using a qualitative thematic approach by three independent reviewers (including CY

SUBMITTER: van der Velden FJS 

PROVIDER: S-EPMC10324191 | biostudies-literature | 2023 Jul

REPOSITORIES: biostudies-literature