Characteristics of patients with pulmonary arterial hypertension from an innovative, comprehensive real-world patient data repository.

ABSTRACT: Pulmonary arterial hypertension (PAH) is a rare, life-limiting disease. PAH registries provide real-world data that complement clinical trial data and inform treatment decisions. The TRIO comprehensive, integrated patient data repository (TRIO CIPDR), is an innovative US repository capturing data on contemporary patients diagnosed with pulmonary hypertension and receiving US Food and Drug Administration-approved PAH therapies. This repository uniquely combines clinical data from electronic medical records with the ability to track drug-prescription and drug-dispensing characteristics, and includes 946 adult patients with PAH (data collected January 2019 to December 2020) enrolled from nine representative US specialist tertiary care centers. Potentially eligible patients were identified bas

SUBMITTER: Farber HW 

PROVIDER: S-EPMC10326474 | biostudies-literature | 2023 Jul

REPOSITORIES: biostudies-literature