The DCM Project Portal: A direct-to-participant platform of The DCM Research Project.

ABSTRACT:

Study objective

To develop a digital platform to conduct family-based, dilated cardiomyopathy (DCM) genetic research.

Design

Innovative approaches are needed to achieve large family enrollment targets. The DCM Project Portal, a direct-to-participant electronic recruitment, consent, and communication tool, was designed using prior experience with traditional enrollment methods, characteristics and feedback of current participants, and internet access of the US population.

Participants

DCM patients (probands) and their family members.

Results

The portal was designed as a self-guided, three module (registration, eligibility, and consent) process with internally created supporting informational and messaging resources integrated throughout. The experience can be ta

SUBMITTER: Jordan ES 

PROVIDER: S-EPMC10327249 | biostudies-literature | 2023 Jun

REPOSITORIES: biostudies-literature