Patient and Family Opioid Decision-Making for Pain Management in Sickle Cell Disease: A Qualitative Study.

ABSTRACT: Pain is a significant symptom experienced frequently by individuals with sickle cell disease (SCD). Pain management includes strategies such as oral rehydration, non-pharmacological therapies (eg, massage, relaxation), and oral analgesics and opioids. Shared decision-making around pain management is emphasized repeatedly in recent guidelines; however, research is sparse regarding factors to be considered in shared decision-making approaches including the perceived risks and benefits of opioids. This qualitative descriptive study was conducted to explore perspectives of decision-making for opioid medications in SCD. We conducted 20 in-depth interviews with caregivers of children with SCD and individuals with SCD to elucidate the decision-making processes around home use of opioid therapy fo

SUBMITTER: Phillips S 

PROVIDER: S-EPMC10329994 | biostudies-literature | 2023 Jul

REPOSITORIES: biostudies-literature