Feasibility Testing of Tubes@HOME: A Mobile Application to Support Family-Delivered Enteral Care.

ABSTRACT:

Background

Assistance from medical devices is common for children with medical complexity (CMC) but introduces caregiving challenges. We tested the feasibility of "Tubes@HOME," a mobile application supporting CMC family-delivered care using enteral care as a model.

Methods

Caregivers of CMC with enteral tubes participated in a 30-day feasibility study of Tubes@HOME November 2020 through January 2021. Tubes@HOME was available on mobile devices and designed to support collaborative care and tracking over time. Key features include child profile, caregiving network management, care routines, feedback loop, and action plans. Care routines delineated nutrition, medication, and procedural tasks needed for the child: frequencies, completions, and reminders. Metadata summarized feat

SUBMITTER: Werner NE 

PROVIDER: S-EPMC10334453 | biostudies-literature | 2022 Jul

REPOSITORIES: biostudies-literature