Living with vaccine-induced immune thrombocytopenia and thrombosis: a qualitative study.

ABSTRACT:

Objectives

To explore the experiences of people up to 18 months after being diagnosed with vaccine-induced immune thrombocytopenia and thrombosis (VITT).

Design

A semistructured qualitative study, conducted via Zoom, of a cohort of people with VITT.

Setting

Participants discussed their experiences of hospitalisation and following discharge.

Participants

14 individuals diagnosed with VITT, recruited via a Facebook support group and advertising on Twitter.

Results

Thematic analysis identified challenges of obtaining medical care and diagnosis; fear of the severity of symptoms and unclear prognosis; and lack of family support due to isolation imposed by the COVID-19 pandemic. Once home, participants experienced continued significant symptoms; fear of recurr

SUBMITTER: Bennett P 

PROVIDER: S-EPMC10335444 | biostudies-literature | 2023 Jul

REPOSITORIES: biostudies-literature