Adopting a palliative care mindset is an unmet need in Parkinson's disease.

ABSTRACT:

Introduction

Parkinson's disease (PD) affects multiple facets of patients' lives, many of which may not be recognized or addressed by their healthcare team. A growing body of evidence has shown that palliative care improves patients' quality of life with PD; however, little is currently known about how patients with PD perceive palliative care.

Methods

An 8-question multiple choice survey was created and given to patients with established care for PD at a movement disorders clinic in a quaternary care center. Patients with less than two years of follow-up or that had atypical features of PD were excluded from the survey.

Results

There were 106 respondents to the survey. A third of patients reported having never heard of palliative care and an additional 25% had heard

SUBMITTER: Kundrick A 

PROVIDER: S-EPMC10336662 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature