Response rates in clinical quality registries and databases that collect patient reported outcome measures: a scoping review.

ABSTRACT:

Background

Patient Reported Outcome Measures (PROMs) are being increasingly introduced in clinical registries, providing a personal perspective on the expectations and impact of treatment. The aim of this study was to describe response rates (RR) to PROMs in clinical registries and databases and to examine the trends over time, and how they change with the registry type, region and disease or condition captured.

Methods

We conducted a scoping literature review of MEDLINE and EMBASE databases, in addition to Google Scholar and grey literature. All English studies on clinical registries capturing PROMs at one or more time points were included. Follow up time points were defined as follows: baseline (if available), < 1 year, 1 to < 2 years, 2 to < 5 years, 5 to < 10 years and 1

SUBMITTER: Ruseckaite R 

PROVIDER: S-EPMC10337187 | biostudies-literature | 2023 Jul

REPOSITORIES: biostudies-literature