Development of cancer surveillance guidelines in ataxia telangiectasia: A Delphi-based consensus survey of international experts.

ABSTRACT:

Background/objectives

Ataxia telangiectasia (A-T) is a multiorgan disorder with increased vulnerability to cancer. Despite this increased cancer risk, there are no widely accepted guidelines for cancer surveillance in people affected by A-T. We aimed to understand the current international practice regarding cancer surveillance in A-T and agreed-upon approaches to develop cancer surveillance in A-T.

Design/methods

We used a consensus development method, the e-Delphi technique, comprising three rounds. Round 1 consisted of a Delphi questionnaire and a survey that collected the details of respondents' professional background, experience, and current practice of cancer surveillance in A-T. Rounds 2 and 3 were designed based on previous rounds and modified according to the comme

SUBMITTER: Neves R 

PROVIDER: S-EPMC10358231 | biostudies-literature | 2023 Jul

REPOSITORIES: biostudies-literature