Cancer Pain Experience Through the Lens of Patients and Caregivers: Mixed Methods Social Media Study.

ABSTRACT:

Background

Cancer pain represents a challenge for cancer patients and their family members. Despite progression in pain management, pain is still underreported and undertreated, and there is limited information on the related needs that patients and caregivers may have. Online platforms represent a fundamental tool for research to reveal the unmet needs of these users and their emotions outside the medical setting.

Objective

This study aimed to (1) reveal the unmet needs of both patients and caregivers and (2) detect the emotional activation associated with cancer pain by analyzing the textual patterns of both users.

Methods

A descriptive and quantitative analysis of qualitative data was performed in RStudio v.2022.02.3 (RStudio Team). We analyzed 679 posts (161 from

SUBMITTER: Filipponi C 

PROVIDER: S-EPMC10365594 | biostudies-literature | 2023 Jul

REPOSITORIES: biostudies-literature