[Patients' Perceptions of the Management of Idiopathic Pulmonary Fibrosis. Explora-IPF Project].

ABSTRACT:

Introduction

Idiopathic pulmonary fibrosis (IPF) impacts the life of patients and their families, so it is necessary to ascertain their perception in the approach to their disease.

Methods

Observational study by means of a specific questionnaire that includes socio-demographic and clinical variables, perception of the impact of the disease (5-point Likert scale), preferences regarding the characteristics of the medication (degree of importance/concern 1-10) and satisfaction with treatment (SATMED-Q® scale 0-100).

Results

69 individuals participated (age: 66.5 ± 7.6 years; time until diagnosis: 16.5 ± 17.4 months; diagnosis time: 49.6 ± 42.3 months). The majority state that IPF limits them physically (90%) and emotionally (75%). The most highly valued features of the t

SUBMITTER: Pena Miguel T 

PROVIDER: S-EPMC10369542 | biostudies-literature | 2022 Jan-Mar

REPOSITORIES: biostudies-literature