The IRDiRC Chrysalis Task Force: making rare disease research attractive to companies.

ABSTRACT:

Background

The International Rare Diseases Research Consortium (IRDiRC) is an international initiative that aims to use research to facilitate rapid diagnosis and treatment of rare diseases.

Objective

IRDiRC launched the Chrysalis Task Force to identify key financial and nonfinancial factors that make rare disease research and development attractive to companies.

Methods

The Chrysalis Task Force was comprised of thought leaders from companies, patient advocacy groups, regulatory agencies, and research funders. The Task Force created a survey that was distributed to companies of different sizes with varied investment portfolios and interests in rare disease research. Based on the survey results, the Task Force then conducted targeted interviews.

Results

The surv

SUBMITTER: Beaverson KL 

PROVIDER: S-EPMC10387802 | biostudies-literature | 2023 Jan-Dec

REPOSITORIES: biostudies-literature