Blending citizen science with natural language processing and machine learning: Understanding the experience of living with multiple sclerosis.

ABSTRACT: The emergence of new digital technologies has enabled a new way of doing research, including active collaboration with the public ('citizen science'). Innovation in machine learning (ML) and natural language processing (NLP) has made automatic analysis of large-scale text data accessible to study individual perspectives in a convenient and efficient fashion. Here we blend citizen science with innovation in NLP and ML to examine (1) which categories of life events persons with multiple sclerosis (MS) perceived as central for their MS; and (2) associated emotions. We subsequently relate our results to standardized individual-level measures. Participants (n = 1039) took part in the 'My Life with MS' study of the Swiss MS Registry which involved telling their story through self-selected life e

SUBMITTER: Haag C 

PROVIDER: S-EPMC10395829 | biostudies-literature | 2023 Aug

REPOSITORIES: biostudies-literature